Programme

Theme: Palliative Care Is Everyone's Business

Theme
1.	Revolution	Calling for fundamental transformation of the existing status quo to ensure palliative care is viewed as an obligation of the healthcare system, equal in value to preventative, curative and rehabilitative care.
2.	Evolution	Celebrating palliative care models evolving to better serve the needs of a diverse South African population, encompassing communities of every age, culture, belief system and socioeconomic status.
3.	Solution	Illuminating innovative problem solving within programmes addressing barriers to the provision of quality palliative care for all.

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Workshops


09h00 – 12h15	Palliative Care: A practical approach	Meaning Making at End of Life: How to find Comfort and Peace	Integrating a Palliative Approcah in the Face of Uncertainty across Perinatal, Neonatal, and Paediatric Settings
12h15 – 13h15	Lunch	Lunch	Lunch
13h15 – 16h30	The Importance of Communication, Language and Culture in Palliative Care	A Toolkit for Building Moral Resilience – An Interactive Workshop on Ethics in Palliative Care	Navigating Difficult Choices and Conversations at the End of a Child’s Life

18:30 – 20:00

Cocktail event
Welcome from Conference Chairs: Dr Margie Venter and Dr Julia Ambler
Welcoming Address: Mrs Tracy Winde

Workshops


09h00 – 12h15	Palliative Care: A practical approach	Meaning Making at End of Life: How to find Comfort and Peace	Integrating a Palliative Approcah in the Face of Uncertainty across Perinatal, Neonatal, and Paediatric Settings
12h15 – 13h15	Lunch	Lunch	Lunch
13h15 – 16h30	The Importance of Communication, Language and Culture in Palliative Care	A Toolkit for Building Moral Resilience – An Interactive Workshop on Ethics in Palliative Care	Navigating Difficult Choices and Conversations at the End of a Child’s Life

18:30 – 20:00

Cocktail event
Welcome from Conference Chairs: Dr Margie Venter and Dr Julia Ambler
Welcoming Address: Mrs Tracy Winde

Plenary		08:00 – 08:30	Conference opening and welcoming addresses Dr Aslam Dasoo (Chairperson of HPCA Board), Dr Ewa Skowronska, Dr Raksha Balbadhur, Dr Michelle Meiring
		08:30 – 09:00	Our story in Palliative Care Prof Liz Gwyther
		09:00 – 09:15	Opening performance ritual by Malika Ndlovu
		09:15 – 10:30	Existential exploration of palliative care in a South African cultural context. A panel discussion Moderator: Dr Julia Ambler Panel: Dr Pelisa Ford, Dr Mpho Ratshikana, Prof Zukiswa Zingela, Prof Nokuzola Mndende, Mr Lawrence Mandikiana, Ms Kwanele Asante, Ms Malika Ndlovu
TEA BREAK		10:30 – 11:00
RELEVANT
			Session Chairs: Joan Marston, Sue Boucher	Session Chairs: Welly Hollander , Kerene Payne	Session Chairs: Fran Tong, Dr Ronita Mahilall
	1	11:00 – 11:20	A study to understand the experiences of adolescents and young adults living with cancer in a northern cape public health setting Dr Leana Spies	Expansion of Palliative Care Training to online platform during COVID-19 Pandemic Dr Ewa Skowronska	The impact of palliative care on the quality of life of patients with cancer in Johannesburg, South Africa Dr Mpho Ratshikana
	2	11:20 – 11:40	“I won’t consent to the ICU!”: The role of Paediatric Palliative Care teams in interpreting emotional expression disguised as goals of care Chelsea Heneghan	The ethical complexities of palliative sedation Dr Shannon Odell	Exploring the importance, meaning and experience of hope for adult patients with advanced cancer and their family caregivers in KwaZulu-Natal Dr Colleen Cox
	3	11:40 – 12:00	Factors Influencing paediatric oncologists’ decision-making when balancing curative and non-curative treatment options at diagnosis in Low- and Middle-income Countries (LMICs) Dr Amy Porter	The long road to palliative care for cancer patients Zodwa Sithole	Practical application of psychotherapeutic interventions that empirically improved dignity in South African palliative care patients Dr Raksha Balbadhur
	4	12:00 – 12:20	Impact of cultural beliefs in relation to osteosarcomas Tracey Brand	A palliative counselling and communication service in the ICU setting during the Covid-19 pandemic Yolande Riekert	Occupational engagement in the face of death. An occupational therapy perspective in palliative care Madelein Kritzinger
LUNCH		12:20 – 13:30
Plenary		13:30 – 14:30	Sustaining palliative care in public and private healthcare sectors Moderators: Dr Raksha Balbadhur, Ursula Torr Mrs Juanita Arendse and Prof Shivani Ranchod
SUSTAINABLE
			Session Chairs: Prof Julia Downing, Dr Sam Govender	Session Chairs: Dr Ewa Skowronska, Dr Sonia van der Spuy	Session Chairs: Linda Greeff, Dr Jennie Morgan
	5	14:30 – 14:50	Sustainable models of PPC care for South Africa Dr Michelle Meiring, Dr Justin Baker, Joan Marston, Alex Daniels	Measuring Quality of Care: Data analysis in palliative care Wayne Oxford-Huggett	We can always do something: Expanding access to palliative care through a hybrid multidisciplinary team Dr Barbara Matthews
	6	14:50 – 15:10		Supporting optimal end of life care: A funder’s perspective Kim Cardwell	A rural palliative Care programme in the Western Cape province of South Africa – a four-year review Prof Louis Jenkins
	7	15:10 – 15:30		The Alignd Palliative Care Programme – Strategies to increase early initiation of palliative care in patients with advanced cancer and related outcomes Dr Linda Holding	TeleHospice as a component of a Hub and Spoke palliative care service in western Kenya Kenneth Cornetta
TEA BREAK		15:30 – 16:00
Plenary		16:00 – 17:00	Integration and innovation in Palliative Care Education and Training Moderator: Dr René Krause Panel: Prof Lionel Green-Thompson, Dr Tania de Villiers, Prof Leon Holtzhauzen, Dr Michelle Meiring
Short Break		17:00 – 17:30
Informal workshop RSVP required		17:30 – 19:00	Navigating the private sector Coordinator: Dr Margie Venter

		07:00 – 08:00
		08:00 – 09:00	Poster presentations
		08:00 – 09:00	Values in Healthcare Experiential Workshops – a support programme for carers & Mindfulness Coordinators: Dr Raksha Balbadhur & Christine Nachmann
		08:30 – 09:00
Plenary Leave no one behind – ensuring access to palliative care for all
			Chairs: Dr Michelle Meiring and Dr Margie Venter
		09:00 – 09:30	Adult palliative care screening tool (SPICT) Dr René Krause
		09:30 – 10:00	Paediatric Palliative Care – Specialist versus generalist care Prof Jan Du Plessis
		10:00 – 10:30	Outcome measures in palliative care Prof Julia Downing
TEA BREAK		10:30 – 11:00
INCLUSIVE
			Session Chairs Tracey Brand, Dr Karl-Günter Technau	Session Chairs: Tracy Rawlins, Dr Lyndal Gibbs	Session Chairs: Dr Janet Stanford, Hilary Grey
	8	11:00 – 11:20	Caring for children with life-limiting conditions in the community through improving their access to palliative care Yvette Andrews	The Biology of Grief Lanise Shortell	Palliative sedation – clinical complexities Dr Mike Brown (Learning session)
	9	11:20 – 11:40	Parents’ perceptions of their children participating in paediatric palliative treatment and care Penelope Mathe	The Biology of Grief Lanise Shortell	Renal supportive care Prof Nicky Wearne (Learning session) Virtual presentation with live Q & A
	10	11:40 – 12:00	The plight of abandoned children with life-limiting conditions in South Africa Tarryn Bell	Organ donation after circulatory death – Are we offering donation in all appropriate circumstances – positive kidney transplant outcomes in a South Africa DCD experience Dr David Thomson	Alternatives to haloperidol and morphine shortages Dr Dalene van Jaarsveld (Learning session)
	11	12:00 – 12:20	Review of a Comprehensive Model of Paediatric Palliative Care Delivery in Cape Town Dr Michelle Meiring	Correlation of survival with two palliative needs assessment tools in cancer patients in a South African Surgical Emergency Center Dr Henriette Burger (Virtual presentation with live Q&A)	Palliative care in patients with COPD and end-stage heart failure Dr Lindsay Farrant (Learning session)
LUNCH		12:20 – 13:30
			Research hub Do you hold an MPhil in Palliative Medicine (or equivalent) or a PhD? Are you engaged in research? Are you interested in being involved in research in the field of Palliative Care? Join us for a discussion to work on an action plan for how we can support and grow our Palliative Care research community in South Africa and beyond
PLENARY Dignity
			Plenary Chair: Dr Justin Baker
		13:30 – 14:00	Understanding and enhancing the dignity experience of SA patients with advanced disease Dr Raksha Balbadhur, Prof Frank Brennan
		14:00 – 14h30	More than ‘the cardiac in Bed 5’: Preserving patient dignity Moderator: Dr Michelle Meiring Parents speak of their experiences: Rod Bloom, Melissa Williams Platt; Bonni Suckling
RELEVANT
			Session Chairs: Alex Daniels, Busi Nkosi	Session Chairs: Ursula Torr, Zodwa Sithole	Session Chairs: Dr Jesne Kisten, Michelle Damon
	12	14:30 – 14:50	Assessing the success of a uniquely South African online learning platform for paediatric palliative care Sue Boucher	Why palliative care is MY business: recounting the lived experiences of health care providers in a hospice setting and exploring ways of retaining them in our organisations to provide this critical area of health care Francesca Tong	Rural experience of end-stage renal disease Hilary Grey
	13	14:50 – 15:10	The use of storytelling and forums as a teaching strategy: creatively incorporating the art of nursing into paediatric palliative care (PPC) education Tracy Rawlins	Reframing Guilt and Blame: A tool for paediatric palliative care teams guiding debrief discussions following patient deaths Dr Sarah Halix	Community participation in establishing an integrated palliative care program (Heideveld) Dr Jennie Morgan
	14	15:10 – 15:30	A reflection on the hidden curriculum in a multi-disciplinary paediatric palliative care course Dr Rika Swanzen	Changing the Ending Dr Dawn Garish	A study to identify the burden of chronic disease on a private emergency medical service in the southern sub-district of Cape Town, and if there is a need for palliative care provision in the pre-hospital healthcare sector Dr Linley Holmes
Tea break		15:30 – 16:00
Plenary		16:00 – 17:00	Doing it differently: Remodelling palliative care for South Africa Moderator: Dr Michelle Meiring Chairs: Mr Lawrence Mandikiana, Ms Sandhya Singh Panel: Dr Mpho Ratshikana, Dr Jennie Morgan, Dr Kat Evans, Tersia Burger, Joan Marston

		08:00 – 08:30	Poster presentations
		08:00 – 08:30	Grief Yoga Class for Professionals by Lanise Shortell
		08:00 – 09:0	Values in Healthcare Experiential Workshops – a support programme for carers & Mindfulness Coordinators: Dr Raksha Balbadhur and Christine Nachmann
INCLUSIVE
			Session Chairs: Prof Brenda Marrow, Dr Karl-Günter Technau	Session Chairs: Thaaniyah Gydien, Dr Lindsay Farrant	Session Chairs: Denise Huxham, Dr Sonia Van Der Spuy
	15	09:00 – 09:20	Gastrointestinal ostomies in paediatric palliative care – surgical perspectives Dr Marion Arnold	Palliative care and mental illness Dr Michelle King (Learning session) Virtual presentation with Live Q&A	Peripheral vascular disease and the need for palliative care Dr René Krause (Learning session)
	16	09:20 – 09:40	Palliative care for a child with hollow visceral myopathy: Challenges and lessons Dr Lyndal Gibbs	An observational study of understanding of spirituality and spiritual care in palliative care in five countries Joan Marston	Palliative care after severe or life-threatening stroke Dr Clint Cupido (Learning session)
	17	09:40 – 10:00	Tempo and touch, sound and smell: an integrative approach to complementary therapies in paediatric palliative care Mari Stevens	Spiritual care within palliative care: Perspectives from soul carers in South Africa Rafaela Peerutin	The golden thread through MND Dr Mitchell Scott (Learning session)
	18	10:00 – 10:20	The various roles of Art Therapy in palliative care Angela Rackstraw	In conversation with death: Riding on the death train Pierre Matthee	Sherry’s Quality of Life Plan; living optimally with motor neuron disease Elizabeth Scrimgeour
TEA BREAK		10:20 – 11:00
Plenary
			Plenary Chairs: Leigh Meinert and Shannon Odell
		11:00 – 11:20	Ethics in Perinatal Palliative Care Dr Julia Ambler
		11:20 – 11:40	Ethics in Geriatrics Dr Susan Coetzer
		11:40 – 12:00	Death is part of the job: navigating personal and professional losses Dr Nelia Drenth
			Coordinators: Dr Julia Ambler and Dr Margie Venter
		12:00 – 12:30	The way forward Mark Heywood
		12:30 – 12:50	Wrap up and Prizegiving
		12:50 – 13:00	Closing and farewell Tersia Burger