Theme: Palliative Care Is Everyone's Business
Subthemes | ||
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1. | Inclusive | Disease and Clinical Conditions: every discipline of medical care, all age groups, and every care setting |
2. | Relevant | Involves a whole bio-psycho-socio-cultural and existential multidisciplinary team approach to every patient with many ethical considerations and conversations |
3. | Sustainable | With the assistance of health systems (policy makers, regulators, medical schemes) to ensure access and integration |
Programme
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Wednesday 26 April
Thursday 27 April
Friday 28 April
Saturday 29 April
Workshops
Moderated by PALPRAC | Moderated by PatchSA | Moderated by HPCA | |
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08h00 – 12h30 | The management of treatment-resistant and complex pain in the palliative care setting | Managing children’s total pain and distressing symptoms through whole-person care | Home-Based Palliative Care |
12h30 – 13h30 | Lunch | Lunch | Lunch |
13h30 – 17h00 | Integrating palliative care into the ICU setting | The law, ethics, and shared decision-making in children’s palliative care | Providing dignity and relief from suffering at the end of life |
18:30 – 20:00 | Cocktail event |
Plenary | 08:00 – 08:30 | Conference opening and welcoming addresses Dr Aslam Dasoo (Chairperson of HPCA Board), Dr Ewa Skowronska, Dr Raksha Balbadhur, Dr Michelle Meiring | |||
08:30 – 09:00 | Our story in Palliative Care Prof Liz Gwyther | ||||
09:00 – 09:15 | Opening performance ritual by Malika Ndlovu | ||||
09:15 – 10:30 | Existential exploration of palliative care in a South African cultural context. A panel discussion Moderator: Dr Julia Ambler Panel: Dr Pelisa Ford, Dr Mpho Ratshikana, Prof Zukiswa Zingela, Prof Nokuzola Mndende, Mr Lawrence Mandikiana, Ms Kwanele Asante, Ms Malika Ndlovu | ||||
TEA BREAK | 10:30 – 11:00 | ||||
RELEVANT | |||||
Session Chairs: Joan Marston, Sue Boucher | Session Chairs: Welly Hollander , Kerene Payne | Session Chairs: Fran Tong, Dr Ronita Mahilall | |||
1 | 11:00 – 11:20 | A study to understand the experiences of adolescents and young adults living with cancer in a northern cape public health setting Dr Leana Spies | Expansion of Palliative Care Training to online platform during COVID-19 Pandemic Dr Ewa Skowronska | The impact of palliative care on the quality of life of patients with cancer in Johannesburg, South Africa Dr Mpho Ratshikana | |
2 | 11:20 – 11:40 | “I won’t consent to the ICU!”: The role of Paediatric Palliative Care teams in interpreting emotional expression disguised as goals of care Chelsea Heneghan | The ethical complexities of palliative sedation Dr Shannon Odell | Exploring the importance, meaning and experience of hope for adult patients with advanced cancer and their family caregivers in KwaZulu-Natal Dr Colleen Cox | |
3 | 11:40 – 12:00 | Factors Influencing paediatric oncologists’ decision-making when balancing curative and non-curative treatment options at diagnosis in Low- and Middle-income Countries (LMICs) Dr Amy Porter | The long road to palliative care for cancer patients Zodwa Sithole | Practical application of psychotherapeutic interventions that empirically improved dignity in South African palliative care patients Dr Raksha Balbadhur | |
4 | 12:00 – 12:20 | Impact of cultural beliefs in relation to osteosarcomas Tracey Brand | A palliative counselling and communication service in the ICU setting during the Covid-19 pandemic Yolande Riekert | Occupational engagement in the face of death. An occupational therapy perspective in palliative care Madelein Kritzinger | |
LUNCH | 12:20 – 13:30 | ||||
Plenary | 13:30 – 14:30 | Sustaining palliative care in public and private healthcare sectors Moderators: Dr Raksha Balbadhur, Ursula Torr Mrs Juanita Arendse and Prof Shivani Ranchod | |||
SUSTAINABLE | |||||
Session Chairs: Prof Julia Downing, Dr Sam Govender | Session Chairs: Dr Ewa Skowronska, Dr Sonia van der Spuy | Session Chairs: Linda Greeff, Dr Jennie Morgan | |||
5 | 14:30 – 14:50 | Sustainable models of PPC care for South Africa Dr Michelle Meiring, Dr Justin Baker, Joan Marston, Alex Daniels | Measuring Quality of Care: Data analysis in palliative care Wayne Oxford-Huggett | We can always do something: Expanding access to palliative care through a hybrid multidisciplinary team Dr Barbara Matthews | |
6 | 14:50 – 15:10 | Supporting optimal end of life care: A funder’s perspective Kim Cardwell | A rural palliative Care programme in the Western Cape province of South Africa – a four-year review Prof Louis Jenkins | ||
7 | 15:10 – 15:30 | The Alignd Palliative Care Programme – Strategies to increase early initiation of palliative care in patients with advanced cancer and related outcomes Dr Linda Holding | TeleHospice as a component of a Hub and Spoke palliative care service in western Kenya Kenneth Cornetta | ||
TEA BREAK | 15:30 – 16:00 | ||||
Plenary | 16:00 – 17:00 | Integration and innovation in Palliative Care Education and Training Moderator: Dr René Krause Panel: Prof Lionel Green-Thompson, Dr Tania de Villiers, Prof Leon Holtzhauzen, Dr Michelle Meiring | |||
Short Break | 17:00 – 17:30 | ||||
Informal workshop RSVP required | 17:30 – 19:00 | Navigating the private sector Coordinator: Dr Margie Venter |
07:00 – 08:00 | |||||
08:00 – 09:00 | Poster presentations | ||||
08:00 – 09:00 | Values in Healthcare Experiential Workshops – a support programme for carers & Mindfulness Coordinators: Dr Raksha Balbadhur & Christine Nachmann | ||||
08:30 – 09:00 | |||||
Plenary Leave no one behind – ensuring access to palliative care for all | |||||
Chairs: Dr Michelle Meiring and Dr Margie Venter | |||||
09:00 – 09:30 | Adult palliative care screening tool (SPICT) Dr René Krause | ||||
09:30 – 10:00 | Paediatric Palliative Care – Specialist versus generalist care Prof Jan Du Plessis | ||||
10:00 – 10:30 | Outcome measures in palliative care Prof Julia Downing | ||||
TEA BREAK | 10:30 – 11:00 | ||||
INCLUSIVE | |||||
Session Chairs Tracey Brand, Dr Karl-Günter Technau | Session Chairs: Tracy Rawlins, Dr Lyndal Gibbs | Session Chairs: Dr Janet Stanford, Hilary Grey | |||
8 | 11:00 – 11:20 | Caring for children with life-limiting conditions in the community through improving their access to palliative care Yvette Andrews | The Biology of Grief Lanise Shortell | Palliative sedation – clinical complexities Dr Mike Brown (Learning session) | |
9 | 11:20 – 11:40 | Parents’ perceptions of their children participating in paediatric palliative treatment and care Penelope Mathe | Renal supportive care Prof Nicky Wearne (Learning session) Virtual presentation with live Q & A | ||
10 | 11:40 – 12:00 | The plight of abandoned children with life-limiting conditions in South Africa Tarryn Bell | Organ donation after circulatory death – Are we offering donation in all appropriate circumstances – positive kidney transplant outcomes in a South Africa DCD experience Dr David Thomson | Alternatives to haloperidol and morphine shortages Dr Dalene van Jaarsveld (Learning session) | |
11 | 12:00 – 12:20 | Review of a Comprehensive Model of Paediatric Palliative Care Delivery in Cape Town Dr Michelle Meiring | Correlation of survival with two palliative needs assessment tools in cancer patients in a South African Surgical Emergency Center Dr Henriette Burger (Virtual presentation with live Q&A) | Palliative care in patients with COPD and end-stage heart failure Dr Lindsay Farrant (Learning session) | |
LUNCH | 12:20 – 13:30 | ||||
Research hub Do you hold an MPhil in Palliative Medicine (or equivalent) or a PhD? Are you engaged in research? Are you interested in being involved in research in the field of Palliative Care? Join us for a discussion to work on an action plan for how we can support and grow our Palliative Care research community in South Africa and beyond | |||||
PLENARY Dignity | |||||
Plenary Chair: Dr Justin Baker | |||||
13:30 – 14:00 | Understanding and enhancing the dignity experience of SA patients with advanced disease Dr Raksha Balbadhur, Prof Frank Brennan | ||||
14:00 – 14h30 | More than ‘the cardiac in Bed 5’: Preserving patient dignity Moderator: Dr Michelle Meiring Parents speak of their experiences: Rod Bloom, Melissa Williams Platt; Bonni Suckling | ||||
RELEVANT | |||||
Session Chairs: Alex Daniels, Busi Nkosi | Session Chairs: Ursula Torr, Zodwa Sithole | Session Chairs: Dr Jesne Kisten, Michelle Damon | |||
12 | 14:30 – 14:50 | Assessing the success of a uniquely South African online learning platform for paediatric palliative care Sue Boucher | Why palliative care is MY business: recounting the lived experiences of health care providers in a hospice setting and exploring ways of retaining them in our organisations to provide this critical area of health care Francesca Tong | Rural experience of end-stage renal disease Hilary Grey | |
13 | 14:50 – 15:10 | The use of storytelling and forums as a teaching strategy: creatively incorporating the art of nursing into paediatric palliative care (PPC) education Tracy Rawlins | Reframing Guilt and Blame: A tool for paediatric palliative care teams guiding debrief discussions following patient deaths Dr Sarah Halix | Community participation in establishing an integrated palliative care program (Heideveld) Dr Jennie Morgan | |
14 | 15:10 – 15:30 | A reflection on the hidden curriculum in a multi-disciplinary paediatric palliative care course Dr Rika Swanzen | Changing the Ending Dr Dawn Garish | A study to identify the burden of chronic disease on a private emergency medical service in the southern sub-district of Cape Town, and if there is a need for palliative care provision in the pre-hospital healthcare sector Dr Linley Holmes | |
Tea break | 15:30 – 16:00 | ||||
Plenary | 16:00 – 17:00 | Doing it differently: Remodelling palliative care for South Africa Moderator: Dr Michelle Meiring Chairs: Mr Lawrence Mandikiana, Ms Sandhya Singh Panel: Dr Mpho Ratshikana, Dr Jennie Morgan, Dr Kat Evans, Tersia Burger, Joan Marston |
08:00 – 08:30 | Poster presentations | ||||
08:00 – 08:30 | Grief Yoga Class for Professionals by Lanise Shortell | ||||
08:00 – 09:0 | Values in Healthcare Experiential Workshops – a support programme for carers & Mindfulness Coordinators: Dr Raksha Balbadhur and Christine Nachmann | ||||
INCLUSIVE | |||||
Session Chairs: Prof Brenda Marrow, Dr Karl-Günter Technau | Session Chairs: Thaaniyah Gydien, Dr Lindsay Farrant | Session Chairs: Denise Huxham, Dr Sonia Van Der Spuy | |||
15 | 09:00 – 09:20 | Gastrointestinal ostomies in paediatric palliative care – surgical perspectives Dr Marion Arnold | Palliative care and mental illness Dr Michelle King (Learning session) Virtual presentation with Live Q&A | Peripheral vascular disease and the need for palliative care Dr René Krause (Learning session) | |
16 | 09:20 – 09:40 | Palliative care for a child with hollow visceral myopathy: Challenges and lessons Dr Lyndal Gibbs | An observational study of understanding of spirituality and spiritual care in palliative care in five countries Joan Marston | Palliative care after severe or life-threatening stroke Dr Clint Cupido (Learning session) | |
17 | 09:40 – 10:00 | Tempo and touch, sound and smell: an integrative approach to complementary therapies in paediatric palliative care Mari Stevens | Spiritual care within palliative care: Perspectives from soul carers in South Africa Rafaela Peerutin | The golden thread through MND Dr Mitchell Scott (Learning session) | |
18 | 10:00 – 10:20 | The various roles of Art Therapy in palliative care Angela Rackstraw | In conversation with death: Riding on the death train Pierre Matthee | Sherry’s Quality of Life Plan; living optimally with motor neuron disease Elizabeth Scrimgeour | |
TEA BREAK | 10:20 – 11:00 | ||||
Plenary | |||||
Plenary Chairs: Leigh Meinert and Shannon Odell | |||||
11:00 – 11:20 | Ethics in Perinatal Palliative Care Dr Julia Ambler | ||||
11:20 – 11:40 | Ethics in Geriatrics Dr Susan Coetzer | ||||
11:40 – 12:00 | Death is part of the job: navigating personal and professional losses Dr Nelia Drenth | ||||
Coordinators: Dr Julia Ambler and Dr Margie Venter | |||||
12:00 – 12:30 | The way forward Mark Heywood | ||||
12:30 – 12:50 | Wrap up and Prizegiving | ||||
12:50 – 13:00 | Closing and farewell Tersia Burger |